Independent Living Donor Advocate Network (ILDAN) is an online networking community of social workers, professional counselors, psychologists, physicians, nurses and clergy who work as independent living donor advocates. ILDAN offers 24/7 virtual resources that provide professional development,solutions, collaboration and peer support through: · Live Webinars · Videos of instruction · Forums
Important ILDAN System Update (Please Review)
|Course & Instructor||Date & Location||Register|
Sherry Grogan, Courtenay Bruce
Online - Scheduled
Continuing Education Credits
The resources provided are in compliance with the Center for Medicare & Medicaid Services (CMS) as it relates to services provided for living donors and the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) guidelines.
Nursing contact hours provided by Terri Goodman and Associates are valid nationwide and accepted by nursing professional organizations in many foreign countries. One contact hour of continuing education credit will be awarded to nurses upon completion of the live webinar and evaluation.
Professional Counselors and Social Workers can earn one contact hour of continuing education credit from the Texas State Board of Examiners of Professional Counselors and the Texas State Board of Social Work Examiners, respectively, by completing either the live or recorded webinar.
The ILDAN Webinar program is also approved by the National Association of Social Workers (Approval #886638759-2175) for 1 Social Work continuing education contact hour per webinar.
ILDAN has been generously funded by:
Bio: Donna Luebke, MSN, APN-BC
Donna L. Luebke is a board certified Adult Nurse Practitioner with an MSN in Critical Care Nursing. She has over 32 years of nursing experience which includes adult critical care, cardiology, electrophysiology, trauma, bioethics, end-of-life care, and organ donation and transplantation including living organ donation. She is currently employed by the Ohio Permanente Medical Group.
Ms. Luebke is a living kidney donor to her sister (1994) who later had a deceased donor liver transplant (1997). From 2003-2006, she served as a public representative on the United Network for Organ Sharing and Organ Procurement & Transplantation Network Board of Directors. Luebke served on the Board of Directors of Lifebanc, the Organ Procurement Organization serving northeast Ohio, from 2006-2012. Since 2003, she has functioned as an independent donor advocate; advocating for safeguards and standards of care for living organ donors with specific focus on their aftercare. She was a co-investigator in the MetroHealth Medical Center sponsored research study “Living Organ Donor Pilot Study: The Ethical Dimensions of Living Organ Donation from Donor Evaluation to Aftercare.” Luebke co-presents the Living Donation lecture for the Case Western Reserve University Masters in Bioethics program.
Ms. Luebke earned a Bachelor of Science in Nursing from the College of Mount St. Joseph in Cincinnati, Ohio in 1980. Her Masters of Science in Nursing, with a specialty in Critical Care was awarded by the Frances Payne Bolton School of Nursing at Case Western Reserve University in 1992. She received her Adult Nurse Practitioner post-Masters certificate from Case Western Reserve University in 1996.
Bio: Patrick D. Hansen, MA, BCC
Patrick D. Hansen has a Masters in Theology and is a Board Certified Chaplain. He is Supervisor of Chaplain Services and Living Donor Advocates at Mayo Clinic Arizona, and also is a member of the Executive Council of Professional Living Donor Advocates, National Kidney Foundation; the Mayo Clinic Bioethics committee and Patient Quality and Safety Subcommittee at Mayo Clinic Arizona. He also has participated as a transplant program reviewer for UNOS.
He is published in , Life’s Final Journey: Expectations as Life Ends, , “Rediscovering the Art of Healing Connection by Creating the Tree of Life”, and “Predicting Patients’ Expectations of Hospital Chaplains” ; also the principal research investigator on spiritual quality of life needs and principal investigator in The Effect of Posting Life Stories on Patient Spirituality, Sense of Social Support, Anxiety, Hope and Pain.
On a personal note Patrick is married and last year served as the caregiver for his wife who was a living kidney donor and stem cell donor for her cousin. It was exciting and eye opening to see the process from the other side.
Bio: Gigi Spicer, RN
Gigi did her nurse training at the Medical College of Virginia and graduated in 1969. She began her career in solid organ transplant in 1983 at the Medical College of Virginia.. In 1990, she moved to Henrico Doctors’ Hospital to establish a kidney transplant service in a community setting. She currently serves as Quality manager for the Transplant program. She has also been an active member of a number of OPTN/UNOS committees including the Transplant Administrators Committee, the Minority Affairs Committee, the Membership and professional affairs committee, AD Hoc living donor data subcommittee and Co-chairmen the UNOS Primer. She currently serve on the Operations and safety committee.
She currently serves on the Board of Directors for the American Foundation for Donation and Transplantation. She has been a board member since 1990. She is currently serving as vice President well as the co-chairman of the Living Organ Donor Network, a program founded by the AFDT board. She has served as Chairman for the development of educational programs for the Independent living donor advocates and living donor teams.
Bio: Helen Kekaha Matthis , RN
(Kekaha means "Sun setting over the ocean.")
I am originally from Hawaii. One of twelve siblings an "Air Force brat"! I knew I wanted to be a nurse since I was five years old. My sister gave me a doll in a nursing uniform and I was always naturally inclined to care for others. I have been in the medical field for 20 years - from home healthcare to Physical Therapy, GYN, and Internal Medicine. Before joining MH I was a patient here. I remembered the wonderful care I received and wanted to work here! Life opened up an opportunity and Transplant found me! I joined MH in 2001 with the Texas Liver Center, working during the day and going to school at night I got my nursing degree. Upon completion of school I continued with the Liver Center as the Tumor Nurse caring for patients with HCC. After which time, I was offered and excited to except the role as Renal Living Donor Transplant Coordinator in 2010. This is such a unique role. I am very blessed to be a part of this process, to care for and work with such an amazing group of people! I love what I do!
In addition, to my passion for nursing and transplant, I love my husband and best friend of 22 years, our 20-year-old daughter, my corgi Sandi and running!
Bio: Gwen McNatt, MS, RN, FNP-BC
Gwen McNatt, MS, RN, FNP-BC is the Director of the Kovler Organ Transplantation Center & Infectious Disease Clinic at Northwestern Memorial Hospital in Chicago. Her career in transplant spans over 30 years; the last 10 years have been in transplant administration. She graduated from the University of Iowa with a BSN, received her MS in Public Health Nursing/Family Nurse Practitioner from the University of Illinois at Chicago, and is currently a doctoral candidate in nursing at Loyola University, Chicago. She is a certified Nephrology Nurse and a board certified Family Nurse Practitioner. Gwen is an author, consultant, and speaker regarding best practices in transplant administration. Her interests are the role of the Transplant Coordinator, Transplant Center staffing models, the financial and administrative implication of paired kidney exchanges between centers, quality assurance in transplantation and application of the high reliability principles in transplantation.
Bio: Miriam F. Weiss, MD, MA, FNKF
Dr. Miriam Weiss is a nephrologist and Adjunct Professor of Bioethics in the Department of Bioethics at Case Western Reserve University. For most of her 40 + years of practice she has worked as an academic physician, first at the University of Iowa Hospitals and Clinics, and later at Case Western Reserve University (CWRU) where she attained the rank of Professor of Medicine. She retired from CWRU in 2005, but continues to practice part-time as a locum tenens physician, caring for kidney disease patients in diverse hospital settings ranging from my home state of Ohio to communities as far as Michigan, Wisconsin, Colorado, and South Dakota. Her work as a nephrologist, and her contribution to K/DOQI were recognized by the National Kidney Foundation when she was named a Fellow of the NKF in 2012.
Transplantation medicine is practiced in tertiary-care referral centers around the world. However the moral meanings of the current practice of live donor kidney transplant remain largely unexplored, as recognized in a recent report of the Institute of Medicine (IOM). The ethical complexity engendered by treating two individuals, when only one is ill, is a prima fascia violation of the principle “do no harm”. Despite this concern, more than 6000 living kidney donors offer to give the “gift of life” each year in the United States. To better understand the complexity of these issues, Dr. Weiss embarked on a “second career”. In May 2010, she completed her Master's degree in Bioethics at Case Western Reserve University. She has been privileged to interact with members of the Department of Bioethics in developing a pilot research project focused on living organ donors.
The timing and choice of therapy for end stage renal disease (ESRD) involves decisions of extraordinary medical, social, economic and ethical complexity. Though kidney transplantation is the preferred treatment for patients with ESRD, it is not always the best individual choice. Patients with ESRD commonly switch treatment modalities over a lifetime of care. As past medical director of the Home Dialysis Unit at CWRU, Dr. Weiss gained a broad perspective on the indications, benefits, and pitfalls of in-center dialysis as well as less-commonly prescribed alternative dialysis therapies. Home hemodialysis or peritoneal dialyses also represent salutary choices for many individuals. The best management of ESRD involves understanding the entire suite of therapeutic options that enjoy Federal support as mandated by the National Kidney Care Act. Dr. Weiss will bring her extensive clinical experience to a discussion of the ethical issues involved in living donor transplantation.
Bio: Christine Frederici Hines, LCSW, CCTSW
Christine Frederici Hines received her BA in Social Work at San Diego State University in 1985 and her Master’s in Social Work at Arizona State University in 1988. She earned her LCSW in California in 1991.
Her practice has been primarily focused on crisis intervention in health-care settings. In the 1990’s she specialized in home health and hospice care at the Visiting Nurses Association in Washington D.C. In 2000 she began her career as a Transplant Social Worker at UC San Diego Center for Transplantation. Along with Robert W. Steiner, M.D., Transplant Nephrologist, Christine developed testing and teaching tools to determine true informed consent and value beliefs for living donors and now extends this testing to potential transplant recipients. Christine and Dr. Steiner have co-authored chapters in two books: “Teaching and Testing the Knowledge and Thinking of Living Organ Donors”, in Living Donor Organ Transplantation, and “The Education and Counseling Process for Potential Donors and Donor Attitudes after Living Kidney Donation” in Educating, Evaluating and Selecting Living Kidney Donors.
Christine earned her Certified Clinical Transplant Social Worker certification in July 2010. She resides in San Diego with her husband and cat. They are both history buffs and enjoy traveling and spending time with family.
Bio: Dr. Janna Gordan-Elliott, MD
Dr. Janna Gordon-Elliott, MD is an Assistant Professor of Psychiatry at Weill Cornell Medical College/New York-Presbyterian Hospital, New York City. Dr. Gordon-Elliott earned her medical degree at Weill Cornell Medical College in 2004. She completed residency in Adult Psychiatry at the New York Presbyterian Hospital/Weill Cornell Medical Center, serving as Co-Chief Resident in 2009-10, and a fellowship in Psychosomatic Medicine at Columbia University Medical Center. She specializes in the care of medically ill patients with psychiatric illness and focuses on transplant psychiatry, as well.
Dr. Gordon-Elliott has worked with patients undergoing solid organ transplantation, including lung, liver, heart, pancreas and kidney. She served as the psychiatrist for New York Presbyterian's Rogosin Institute for Pancreas and Kidney Transplantation for two years, where she worked closely with donors and recipients, including many involved in paired exchange kidney transplantation. She now works as the transplant psychiatrist for the liver transplant program in the Center for Liver and Digestive Diseases, Weill Cornell Medical College/New York Presbyterian Hospital.
Her academic interests within the field of transplantation include outcome prediction in transplant recipient candidates, and psychosocial issues in kidney donors participating in paired exchange.
Bio: Dr. Michael Braun
Dr. Michael C. Braun, a nationally recognized expert in pediatric kidney disease, is chief of nephrology at Texas Children’s Hospital and section head of nephrology within the department of pediatrics at Baylor College of Medicine (BCM). Dr. Braun came to Texas Children’s Hospital in April 2011 from the University of Texas Health Science Center at Houston where he served as the chief of nephrology and hypertension in the department of pediatrics.
Dr. Michael Braun is a nationally recognized clinician, educator and investigator and a leader in pediatric nephrology. He has served as the assistant editor for the American Journal of Nephrology and section editor for the Journal of Pediatric Nephrology.
Dr. Braun has received numerous awards for his contributions to teaching and medical practice, including the Dean's Award for Teaching Excellence at the University of Texas Health Science Center.
Dr. Braun received his medical degree from University of Pennsylvania School of Medicine and completed his pediatric residency training at Northwestern University School of Medicine, followed by postdoctoral fellowship training in pediatric nephrology at Cincinnati Children's Hospital and research training in immunology at the National Institutes of Health.
Bio: Tonya M. Frazier, RN BSN CCTC
Tonya Frazier is a living donor transplant coordinator at The University of California at Los Angeles and has worked in the field of nursing for nearly 20 years. She received a Baccalaureate in nursing from University of Central Arkansas. Tonya started her career at St. Vincent’s Medical Center in Little Rock, AR in renal dialysis. She eventually transitioned to the field of Managed Care as a Case Manager for QualChoice Health Plans and in 2000, moved to Los Angeles to advance her career in the field of Managed Care. Soon thereafter, she worked as a transplant case manager at Meridian Health Care Management where she discovered a passion for solid organ transplantation and in 2006 joined the UCLA team as a kidney transplant coordinator.